In the United States, about 1 in 8 women will be diagnosed with breast cancer in their lifetime. As we raise awareness, it’s essential to share stories that empower and educate. I want to share my personal journey with breast health, highlighting the importance of advocacy and awareness.
For years, I relied on thermograms as my primary form of preventative testing for my breasts. However, a few years ago, I felt a strong inclination to get a mammogram. As women, we are all familiar with the uncomfortable process of having our breasts compressed for imaging. During this mammogram, the technician returned, requesting an additional view to establish a baseline. At that moment, I knew something more was going on and they found something that needed further imaging..
Following the scan, the radiologist delivered the news: “You have extremely dense breasts, and we found a grouping of microcalcifications. I recommend a stereotactic needle biopsy.” When I suggested a breast MRI first—concerned that the biopsy would alter the tissue and complicate the situation—the radiologist dismissed my request, saying twice, “You’re wrong!” I left the office in tears, feeling disempowered and upset.
It’s essential to remember: you have the right to choose your healthcare providers. I decided that this doctor would not be part of my care team in the future. No one should ever leave a medical appointment feeling how I felt, so I was determined to make sure I only had supportive doctors on my team.
After discussing my concerns with a friend who had faced bilateral breast cancer, I learned about breast density ratings, which categorize tissue from A to D. Did you know your density rating is disclosed on your mammogram results? I fell into Category D: extremely dense. This rating complicates cancer detection, as dense breast tissue often obscures abnormalities on mammograms.
Understanding my breast density was crucial in my decision to advocate to get a breast MRI. When you view the mammograms for Category D breasts the image appears almost entirely white, making it difficult for radiologists to identify cancerous areas. About 10% of women have extremely dense breasts, and for these women, additional imaging like breast MRIs is recommended. My good friend shared with me that seeing something on a mammogram with someone who has extremely dense breasts is like trying to find a snowman in a snowstorm.
Thankfully, my family practice doctor understood my concerns and agreed that a breast MRI was warranted. She advocated for me with my insurance, ensuring it was covered.
The MRI revealed the calcifications were low suspicion for malignancy. Although I was unsure whether to proceed with the biopsy or monitor the situation, I ultimately chose to move forward with the test. This was one of those situations where the worry of not knowing weighed heavier than the risk of the procedure.
During a stereotactic-guided core-needle biopsy, the doctor uses special mammography equipment, and the computer guides them to the exact location to take a sample. Of course, we always knew I was special, and they kept having to take additional samples. I think they took over 11 samples and the radiologist commented that in over 25 years of practice, she had never encountered breast tissue as difficult as mine. Fortunately, the results were benign, and I would continue to be monitored annually.
While the biopsy left me sore, bruised and swollen, I was grateful for the healing hands of my therapist, Kristin, who provided lymphatic drainage and myofascial release techniques to aid in my recovery.
Through this experience, I learned several invaluable lessons:
- Knowledge is Power: Understanding your body and medical options is crucial. Research before going to the doctor and definitely after you receive a diagnosis. Consult with others who also have knowledge in the specific area.
- Speak Up: Advocate for yourself and communicate your needs to your healthcare providers. If you don’t feel heard or supported, find another practitioner.
- Utilize Resources: If you are in Southeastern WI, ProHealth has a high-risk breast cancer clinic that I now attend, where I have a nurse practitioner advocating for me, but also ordering my annual breast MRI and mammogram.
- The Power of Hands-On Work: Myofascial release and lymphatic drainage are beneficial before and especially after procedures (mammograms, biopsies, etc).
As we observe Breast Cancer Awareness Month, let’s empower one another through our stories. Together, we can foster a community of awareness, support, and proactive care. I started a thread over on our Natural Balance Therapy FB page. Click here to share your own story and experiences.
Remember, knowing your body and advocating for your health can make all the difference.